I am an Alzheimer's Caregiver: stress

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Wii a Useful Tool for Alzheimer's Caregivers

Back in May I wrote about Wii Fit suggesting it would be an excellent tool for older people and those suffering from Alzheimer's disease.

The game satisfies two needs: social interaction and exercise.

Recently, I am reading articles about how Wii is being adopted by Senior centers and assisted living facilities all across the country. The game of choice seems to be bowling. Wii bowling provides moderate exercise and allows groups to get together much like they would at a bowling alley.

Ninetendo offers hundreds of games that can be played with Wii. You can exercise your body and even exercise your brain with Wii Brain Academy.

The Wii game My Fitness Coach would be particularly effective for both the person suffering from Alzheimer's and their caregiver. I know from personal experience with my mother that exercise is both necessary and important. I have written here many times about the immediate positive effect exercise has on my mother.

Dear Caregiver, you could use this tool to improve socialization by inviting friends and neighbors over to play along with you.

Friends and family of caregivers, Wii is a great gift. Perhaps you could consider "chipping in" and purchasing this for a loving caregiver or suffering family member.

Don't get detered by the name of the game. If you are older you can sit in a chair while doing the majority of the exercises. When my mother attends the Silver Sneakers program at Gold's gym she sits for most of the exercises. Keep in mind, my mother is 92 years old and suffers from Alzheimer's.

My Fitness Coach is like having a personal trainer right in your home. You can get coaching on 500 exercises including strength training, cardio fitness, and flexibility training. The game includes includes nine diiferent environments and music. If this sounds intimidating you can always go with Wii Fit. Wii Fit is less rigorous, contains hundreds of exercises, and also has a Body Mass Module. Wii Fit uses the Wii Balance Board.

I believe Wii is a wonderful tool that can be used by caregivers to satisfy personal and caregiving needs. Wii could improve your day. There are hundreds of games--so you can have fun. Both you and the person you are caring for will benefit.

What is Wii
Wii Sports (includes: Tennis, Baseball, Golf, Bowling and Boxing)
Wii Big Brain Academy
Wii Play inlcudes: The shooting gallery, Mii-matching game, billiards, air hockey, tank battles, table tennis rally, Mii poses and a cow-riding race)
Wii FAQ (Frequently Asked Questions)

Exercise may improve function in dementia patients

NEW YORK (Reuters Health) - Organized exercise designed to increase strength, flexibility, mobility and coordination may improve overall physical function among nursing home patients with Alzheimer's disease, researchers report.

Alzheimer's disease patients who have physically deteriorated are less able to perform activities of daily life, which, in turn, affects their quality of life. Despite the well-known physical benefits obtained from exercise, Professor Alejandro Lucia and colleagues in Spain found comparatively little research has focused on exercise training among patients with Alzheimer's disease.

To address this, Lucia, of the Universidad Europea De Madrid, and collaborators compared the outcomes of 16 Alzheimer's disease patients who were randomly assigned to receive normal care involving no programed exercise or to a12-week exercise program as part of their nursing home care.

Each group consisted of five women and three men of similar functional capacity at the start of the study. Participants' average age was 73 years in the normal care group and 76 years in the exercise group, the investigators report in the International Journal of Sports Medicine.

Exercise sessions, held 3 days each week, included 75 minutes of warm-up and cool-down stretching, inside walking, joint mobility activities, elastic exercise-band resistance training, and coordination exercises using foam balls.

Lucia's team reports the exercise group had significant improvements in measures of upper and lower body strength and flexibility; agility and balance; walking abilities; and endurance. Exercise participants also showed greater ability to independently perform activities of daily living such as rising from a chair, transferring from bed to chair, bathing, or dressing.

By contrast, the normal care group showed no changes over the 12-week period.

These findings show that shorter duration exercise programs "are sufficient to induce significant improvements in patients' functional performance and independence," the investigators state. Adherence to the training program was nearly 100 percent, they add.

While more evidence of efficacy is needed from larger study populations, Lucia and colleagues suggest similar programs could be included in the overall nursing home care of Alzheimer's disease patients.

SOURCE: International Journal of Sports Medicine, October 2008.

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Bob DeMarco is a citizen journalist, blogger, and Caregiver. In addition to being an experienced writer he taught at the University of Georgia , was an Associate Director and Limited Partner at Bear Stearns, the CEO of IP Group, and a mentor. Bob currently resides in Delray Beach, FL where he cares for his mother, Dorothy, who suffers from Alzheimer's disease. He has written more than 500 articles with more than 11,000 links to his work on the Internet. His content has been syndicated on Reuters, the Wall Street Journal, Fox News, Pluck, Blog Critics, and a growing list of newspaper websites. Bob is actively seeking syndication and writing assignments.

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The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's Type Dementia

You might get the impression from the title that this book is only for professionals; this is not the case. The validation theory works and it is simple to apply. The case studies are invaluable and provide you with specific situations that you are sure to encounter. I am convinced everyone involved with elderly parents suffering from dementia or Alzheimer's will benefit greatly from this book.

I give The Validation Breakthrough five stars and put it on my must read list. You will certainly reduce stress by learning these techniques.

The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's Type Dementia

Please take a moment to read the reviews on the next page.

Buyer Reviews

By Martine Davis

If you live with or care for someone with Alzheimer's or other age related dementia, you must read this book ! What an eye-opener! For the first time I finally understood why Alzheimer's patient say what they say and do what they do. It all makes so much sense now. This small book reads quickly and is full of examples of real people who have been helped with the author's techniques. It shows you how to handle the blaming, accusing, name-calling and the repetitive motions ... It also explains why the way most of us react to Alzheimer's patients actions actually worsens the situation and can cause them to progress to a more advanced stage of Alzheimer's disease ! This book could extend the relationship between the patient and caregivers and should be MANDATORY reading for all staff working in nursing homes and long-term care facilities !

By J. Summers, CNA (Alaska)

An excellent book for both the professional caregiver and families trying to deal with this sometimes unfathomable disease. Gives practical ideas and techniques for helping people with dementia deal with issues from paranoia and blaming to sadness and helplessness. I have just begun to explore these techniques and am finding they work so well that they should be mandatory training for nurses, PCAs and CNAs. Instead of treating our seniors like they are children we at last have a way to talk to them on an adult level, tap into where they are at, deal with the problem at hand and we all come out better for the experience.

Reviewer: A reader

More and more relevant as we care for aging parents. With a title like this one might think: "Boring" Absolutely not so! Right from the start, the stories of the people are so real and so touching that one of my friends said she was moved to tears. She was so sad not to have known about this way of relating to her father. "It works," she told me. "Validation Breakthrough" shows a new way of relating to people with dementia of Alzheimer's type. This approach is effective in helping the person to clear up unresolved issues in their lives. You do not have to be a professionally trained therapist to use validation. Validation will make the relationship more rewarding for both people. It is not hard to learn and makes wonderful sense. Some readers may want to ask new questions of care facilities (like nursing homes) as the validation approach will keep loved ones from slipping into a vegetative state. It will also make the care much kinder, and more rewarding for the care givers

The Validation Breakthrough: Simple Techniques for Communicating with People with 'Alzheimer's-Type Dementia'

The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease and Memory Loss in Later Life

What If It's Not Alzheimer's: A Caregiver's Guide to Dementia

The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's Type Dementia

The Validation Breakthrough: Simple Techniques for Communicating with People with 'Alzheimer's-Type Dementia'

alzheimer's, caregiving, dementia, family, Naomi Feil, stress, Validation Therapy

Alzheimer’s care classes help but who has the time?

To be honest I am not aware of any Alzheimer's care classes and I am almost four years into caring for my mother. I have no doubt these kinds of classes would be more then useful. It takes a long time to figure out how to communicate effectively and just as long to develop a mind set that allows you to deal with the irrational behavior that comes at you like a tsunami.

In my case, it was talking to others that had come before me that helped me the most. Simply knowing that others had experienced the behaviors that I was experiencing somehow comforted me. Seeing the look of understanding and feeling the empathy taught me an important lesson—I was not alone.

My goal when I started caring for my mother was to keep her out of a nursing home as long as possible. I thought a year or two when I started.

Alzheimer’s care classes help, but few have time

The findings are stunning: Offering simple training to people struggling to care for loved ones with Alzheimer’s disease not only eases their burden — it even can keep patients out of nursing homes for an extra 1½ years.

But the exciting research also runs headlong into a grim reality.

Alzheimer’s caregivers seldom can make time in their daily grind to seek out that kind of help.

And when they do, they too often find waiting lists for services, or programs geared only toward people with advanced disease and not the larger pool in the purgatory that is dementia’s decade-long middle ground between independence and helplessness.

That is one of Dolores Melnick’s biggest frustrations.

Her husband refused to enroll in the “day care” for Alzheimer’s patients near their Hainesport, N.J., home. It was hosting a singalong, and workers were setting up plastic bowling pins, too childish for Bob Melnick.

That meant no time for her to sneak off to a caregiver support group. On weekdays she worries about whether he’ll be OK because he’s home alone while she’s at work.

“I feel bad sometimes because he’s home. I feel bad that I have to leave in the mornings,” Mrs. Melnick says, eyes brimming with tears. “I think he realizes he can’t do much.”

A skyrocketing problem

More than 5 million Americans are living with Alzheimer’s disease. It afflicts one in eight people 65 and older, and nearly one in two people over 85.

Worse, as the population ages, Alzheimer’s is steadily rising. Sixteen million are forecast to have the mind-destroying illness by 2050, not counting other forms of dementia.

Those figures are cited repeatedly in the push for more research into better treatments. But a frightening parallel goes largely undiscussed: As Alzheimer’s skyrockets, who will care for all these people?

And will the long-term stress of that care set up an entire population — once-healthy spouses and children — to suffer years of illness, even early death?

“I don’t think society and policymakers have fully grasped the future magnitude of what we’re up against, and how massive an operation we have to begin ... to deal with this,” says Dr. Richard Suzman of the National Institute on Aging.

Already, an estimated 10 million people share the task of caring for a relative or friend with dementia, the Alzheimer’s Association estimates. Nearly one in four provides care for 40 hours a week or more.

Handling the wandering, aggressive outbursts and incontinence — plus eventual round-the-clock monitoring — is very different than, for example, learning to lift someone who’s physically impaired but won’t fight the caregiver.

Those are skills that families must be taught, says Mary Mittelman of New York University’s School of Medicine, who is leading a new movement to develop customized training programs for Alzheimer’s care.

Today, most learn through trial and error.

Finding their balance

Louise Eckert sits her 85-year-old mother, Dorothy, in a chair backed against the wall and pushes a heavy table in front of her. It keeps her from tipping her chair backward like a schoolchild.

It’s noon, but Dorothy roamed her Norristown, Pa., home for much of the night and just woke for breakfast. Louise spoon-feeds her mother: grapes and prunes mixed into cereal; toast cut into bites; Alzheimer’s pills crushed into cottage cheese so she no longer can spit them out.

The conversation is, well, unconventional.

“I want to hit you,” Dorothy whispers.

“You do not want to hit me,” Louise calmly responds. Minutes later mother and daughter are grinning affectionately.

“She’ll hit you and two minutes later, she loves you,” says Dorothy’s husband, John Eckert, 88.

Not too long ago, the Eckerts despaired of achieving this calm. Dorothy’s mild-mannered Alzheimer’s suddenly morphed into outright aggression. She climbed furniture, pulled the TV on herself, tried to climb out the window.

Area aging services offered little advice. The Eckerts finally found the right mix of medication and caregiver tricks. Take Dorothy’s night roaming, a dementia trademark. Her husband installed bed rails; she crashed over them. He slept holding a belt tied to her waist; she slipped it off without waking him.

Now the couple sleeps on a mattress on the floor. Large wind chimes jangle when Dorothy’s up.

“In the beginning there was pressure. Now we expect it’s going to happen,” her husband says of new symptoms. “You go along with the flow.”

John Eckert brushes aside questions about the strain. He looks fit but has had prostate cancer, a small heart attack and mild stroke. Louise tried to hire a respite-care service so her dad could take a walk. But it requires a four-hour daily minimum, more than they need. Alzheimer’s day care runs in the mornings, when Dorothy sleeps.

They manage because Louise, the couple’s youngest daughter, lives with them and can rush home from her counseling job at a nearby school if needed.

What If It's Not Alzheimer's: A Caregiver's Guide to Dementia

Alzheimer’s care classes help